The Blog of hardtimes

I haven't bothered with the witch since her negative reply, but I did write a cover note for the wish thing to send to her, which has now been sent with the sanction of the Hospice nurse, I let her read it to make sure it really wasn't me that was being a bitch! She said it was a perfectly nice letter and to send it,so I did yesterday,

we are giving her a week to reply, in the meantime the social worker from the hospice is going to contact her I think, and if that  doesn't work we will try the Law.

Si has opted for a hot air balloon ride, with or without his kids, his dad will go up with him and his younger brother the rest of us a too chicken. We are hoping to have  a huge family picnic as well, which would be great, we can video it and take photo's so the memories will be good. I think the venue will be Leeds Castle  in Kent, it's beautiful there, they have a small zoo, a maze, stunning grounds and of course a castle with a moat, it's a wonderful place for adults and kids  alike, they also do hot air balloon rides, so perfect!        Fingers crossed!

Si is doing really well at the moment, he is even walking a few paces unaided, he's wobbly but  ok we are making sure that he doesn't fall,  he uses the wheelchair more often than not, but is able to step down into the garden, so I can get the wheelchair out on my own. His meds are being withdrawn from the injection driver still only 15mg left to go and he is holding, no fits no sickness and no pain, so that is great. We know this is a temporary respite but it's really nice to be spending time with him being as well as poss. I just hope it continues until he see's the kids.

I have decided to go to his day out whether she is there or not, I'm sick and tired of her running our lives, if she objects when she gets there tough!!!!!!!!!! I have said I would forego the day just to passify her in the letter, but hey ho this is my one and only Lie, and I have no regrets or  remorse and the hospice nurse said I should be there as I'm the  one that nurses him and administers  his meds, which might be neccessary on the day out.

So there you go , You are all witness to my "Lie" and are accomplices in my duplicity, share the guilt and revel in the rewards, lets all hope there are some, and I will post pics when and if I get them.

There will be tears and smiles and probably screams [ from the balloon] but memories to treasure for all time.